Hear about the day they received ZOLGENSMA and see how they are doing years after treatment. Other support includes verification of insurance benefits and coordination of financial assistance programs for eligible patients. Contact the OneGene Program at 855-441-GENE (4363), Monday-Friday (8 AM-8 PM ET), to learn more. Protection against respiratory syncytial virus (RSV) is recommended. Targets the genetic root cause of SMA. A number of these sites can be found on our map locator tool. This helps manage elevated liver enzyme reactions to ZOLGENSMA by the body’s immune system. Approximately 60 sites across the US are dosing individuals with Zolgensma. US-ZOL-20-0250 07/2020. The OneGene Program™ is a team of highly trained and dedicated people who will support and guide you and your family before, during, and after treatment. It is a one-time treatment. ©2020 AveXis, Inc. All rights reserved. Do I need to take precautions with the patient’s bodily waste? A Field Reimbursement Manager helps your doctor navigate insurance requirements and authorizations. After the ZOLGENSMA Prescription Form and Patient Consent Form are received, a team of highly trained and dedicated people from the OneGene Program will call you to discuss the variety of patient resources that are available to support your family. Contact the patient’s doctor immediately if you see signs of a possible viral respiratory infection such as coughing, wheezing, sneezing, runny nose, sore throat, or fever. Talk with the patient’s doctor to decide if adjustments to the vaccination schedule are needed to accommodate treatment with a corticosteroid. This information does not take the place of talking to your healthcare professional about medical conditions and treatments. *The specific treatment course for each patient will be determined by the treating doctor. More About Zolgensma Zolgensma is FDA-approved for patients with all forms and types of SMA who are under Providing support along the way is the OneGene Program™. What is the most important information I should know about ZOLGENSMA? The latest clearance includes all 27 European Union nations, plus Iceland, Norway, Liechtenstein and … Your doctor will determine when to gradually reduce the dose of the corticosteroid and when to stop it. EIN: 36-3320440. Knowing what to expect and what you can do now will help you and your child prepare for treatment with ZOLGENSMA® (onasemnogene abeparvovec-xioi). That’s why it is important to work with your doctor and care team and review supportive care needs. These may include difficulty swallowing or breathing or muscle weakness. Knowing what to expect and what you can do now will help you and your child prepare for treatment with ZOLGENSMA® (onasemnogene abeparvovec-xioi). If you have any additional questions prior to treatment day, you can reach out to your doctor and care team or your Patient Resource Manager. This website may use cookies to improve the site and your experience. ZOLGENSMA is given as a one-time infusion into a vein. Providing support along the way is the OneGene Program™. Read the latest issue of Compass, Cure SMA’s research publication. Novartis Gene Therapies is currently testing a second way of delivering gene therapy.